May 20, 2010

Processing Things

I’ve wanted to write about our visit to Occupational Therapy since the evaluation last week, but the truth is I’m not sure how to put my feelings into words. And oftentimes, I write therapeutically. I write because I’m bubbling over with things to say. I write when I feel like I’ll explode if I don’t.

But this time, right now, I feel more at peace with my son’s quirkiness than I have in two years. I’m at peace—excited even—because an energetic young therapist spent two hours gently mining through my son’s sensory issues and behaviors. She spent two fun hours with him identifying his fine motor delays and identifying his tactile, vestibular and proprioceptive dysfunctions.

You might not think that dysfunction is a great thing to hear about your four-year-old, but when you’ve been slowly bubbling over with doubts and fears and worries and guilt for two and a half years, it’s kind of relieving to hear that from a professional.

Okay, it’s really relieving. Especially after going through neurology evaluations and developmental pediatrics evaluations and early intervention evaluations only to be told, “we’re not sure what’s going on, just wait and see.” Especially after starting to feel like a psycho spending too much time doing research on the Internet.

I’m a little bitter that those professionals failed to recognize the Sensory Processing Disorder symptoms he displayed at the time—particularly his toe-walking and “squeezing” (chronic motor tic or stereotypic movement disorder depending on which doctor was sure about it) behaviors. The last year has been challenging. Not horrible, just challenging. And I’m sad for all the times we chalked things up to Terrible Threes or just plain bad behavior or my kid is demon spawn.

When we were finished with the appointment, the cheerful therapist said, “Do you have any questions?”

And I said, “Well. That’s it? I mean, he has Sensory Processing Disorder? For sure?”

And she laughed knowingly and said, yes, for sure. And I fidgeted and fought to keep from just throwing my arms around her and sobbing.

It’s good news when your child’s label means that he’s going to get help. Help from professionals, from a fun team, from activities he’s convinced are games and tests. (He adores tests.)

During his evaluation, I watched him fail to catch a ball. Again. And again. And again. And I smiled because that’s just my kid, that’s my son. He’s awkward and goofy.

I watched him throw down a pair of scissors and snarl, “I CAN’T DO IT, IT IS TOO HARD,” because his brain just isn’t speaking to his body the right way. The same way he growls and spits when I ask him to try to put his pants or a shirt or socks on. I didn’t smile. But I still felt relief—pure relief when her therapist carefully guided his hand and softly encouraged him and told him that even if he can’t, she’ll help him and they’ll do it together. They slowly cut a wide, shaky oval out of a piece of paper.

They’ll help us and we’ll do it together.


This may or may not be related:

  1. Stargazing, Magic Tricks and Meltdowns
  2. Ready, Set, Go
  3. Sometimes my Vocabulary Threatens to Narrow to a Few Choice Expletives
  • http://topsy.com/trackback?utm_source=pingback&utm_campaign=L2&url=http://mommymelee.com/2010/05/processing-things/ Tweets that mention Processing Things « Mommy Melee — Topsy.com

    [...] This post was mentioned on Twitter by Modern Bird Studios, Maria . Maria said: new post: Processing things. http://bit.ly/aYQoJY [...]

  • PrincessJenn

    I too know that sense of relief. To know someone else sees what you're seeing and there's a name for it.
    The other thing I would recommend you look into, just based on your descriptions of him, is possibly DCD (developmental coordination delay).
    I'm so glad you were able to get both of you the help you so need.
    And it does get better. It really does.

  • heathersebi

    I'm over here crying for you…because I completely empathize. Screw the Soccer Mom label…I'm a freaking Therapy Mom! WOOHOO!!

    Glad you are feeling peace…I've been waiting to hear this… :)

  • http://itsabeautifulwreck.com kim@beautifulwreck

    This is how I felt when my son Jack, now 8, began physical and occupational therapy. I was so glad that we had the help and that all his problems would be addressed. He was not all the labels and negative comments I constantly got from him, and it wasn't “all in my head”. We loved our therapists and are grateful they came into our lives. I hope this time is a wonderful renewal of learning and strength. — Kim

  • PrincessJenn

    Here's a link to a DCD questionnaire
    http://www.dcdq.ca/pdf/DCDQ_Administration_and_…

  • http://thesquashedbologna.blogspot.com/ Varda (@squashedmom)

    I am so sorry that past so-called professionals were so ignorant. I thought a lot had changed since my now nearly 8 year old son went into the system at 18 months and we began trying to figure out all that was going on with (he's on the autism spectrum w/ PDD-NOS diagnosis). Information about sensory Integration processing disorders is everywhere, there's a million books, well, a few good ones anyway (try “Raising a Sensory Smart Child” and the “Out-of Synch Child” series for starters). I know how relieving that feeling is when what is going on with your child is finally acknowledged and you can get down to the business of helping him properly. Come visit me on my blog,The Squashed Bologna, if you want to hear some about my journey. Good luck!

  • http://www.decablog.com/jett/blog.php Jett

    Maria, you're just so beautiful. I'm so proud to know you.

  • http://www.kidtogrownup.com/ BobbiJanay@Kid to a Grown Up

    I am so happy that you and him are finally getting the help that it sounds like he needs.

  • fruityfantastica

    Ah, I remember the relief of a diagnosis. I wish you and your son healing and sorting-things-out and joy.

  • fruityfantastica

    Also, I'll add to Varda's recommendations with this: The Out-Of-Sync Child has Fun. It has lots of truly great activities for kids and most of them use things around the house that you probably already have.

  • http://scargosun.blogspot.com/ Scargosun

    YAY!!!!!!!! No other words!

  • http://twitter.com/susanlizbeth Susan Lindgren

    We are on almost 4 years of therapy and educational intervention for my son and SPD and as I am writing this I am floored that it has been 4 years! WOW Unreal!
    The picture of the cars could have been taken at my house yesterday. All the best! It is a daily process, and it sounds like your on the right path.

  • http://madalinesthemagnificentmayhemmaker.blogspot.com/ HaB

    It's is so refreshing as a mom to finally know that someone understands. That someone appreciates the abilities your child has and can nurture and guide the ones they need help with. It was the same feeling my husband and I had when we learned that our daughter needed Speech Therapy. We were relieved, we were grateful and we were beyond thankful that FINALLY someone understood! Because for months, it had been such a huge slap in the face to us, as we tried to parent and understand our little girl who was so advanced in so many areas, but no matter what, she could not verbally communicate with us. We felt like bad parents – until we got help. While she is a ST grad after a short 6 month therapy stint, we are still working our way through her mild SPD behavior. Like a few others mentioned, “The Out of Sync Child” is a great resource. I refer to it and my copy of “Raising Your Spirited Child” on a regular basis.

    Best of luck to you. And, thank you so very much for sharing your journey down this path with us. I know I certainly appreciate it.

  • http://jodifur.com jodifur

    While Michael doesn't have SPD, he is in OT for some fine motor delays, and OT has done wonders for him. His OT is an Angel from heaven. She has saved us, and saved him really.

    That scissor moment, and those pants, been there, done that. He gets himself dressed now. Every morning. “No, mommy, I don't need your help. Best words ever.”

    So, so happy for you.

  • http://whiskeyinmysippycup.com Mr Lady

    I read this and all I can think is THAT IS MY 10 YEAR OLD. So thank you for sharing it. A lot, thank you.

  • http://www.staciesmadness.com staciesmadness

    i am sure it is relief just to have a “name” for his behaviors…it's a direction…a goal…awesome.

  • grace134

    Good. This is good.

  • http://www.notesfromthecookiejar.com Scatteredmom

    Maria, not a lot of posts make me tear up like this one did. My 14 year old also has a form of Sensory Processing Disorder, and I can honestly say that I've been there. You are lucky-to find out when he's four, rather than 11 like us, gives you so much time for therapy and help.

    My son still is awkward and goofy, can't tie his shoes well and needs a laptop for his school work. He can't throw a ball (or catch one), or skate. But he's also smart and funny, has lots of friends, and these days, you can barely see the “issues” at all. He's taught ME so much and I'm grateful that I am lucky enough to be his mother.

    Hang in there. It's a rough road in spots, I won't deny that. But it DOES eventually smooth out and the view along the way is pretty damn awesome. Promise.

  • twobusy

    There's so much here to respond to, but the thing that really leaps out at me is:
    “It’s good news when your child’s label means that he’s going to get help.”

    Which is so, so, SO very correct, and such a difficult thing for so many parents to figure out. I know it took me a long time to look beyond the initial (and for us shocking) impact of a dx to see the practical and positive applications it offers… so I'm very, very glad for you (and your son) that you're already very clear-eyed about that.

    (total non sequitur note: that's one stunningly handsome boy you've got there.)

  • morningsidemom

    A thousand hugs and cheers and whoops and hollers and hearts for you and your boy. (Twobusy is right, he is stunning.)

  • http://www.brokennerves.net Melissa Dominic

    i am happy for all of this and happy mostly for you. breathe a bit easier now, you know?

  • http://boingerhead.blogspot.com Natalie

    I remember the relief and the validation of a diagnosis. It's hard knowing you've got to take a journey, but not knowing which freaking direction to start.

  • mommymae

    i'm just so so happy you have professionals on your side now. yay, team chipmunk!